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  • Week Intensive of Neurorehab – Review

    August 26th, 2017 by

    I just got home from a full week of daily neurorehabilitation at the Kennedy Krieger Institute in Baltimore. By the end of today, we managed to get my ankle to an active -10 degrees of dorsiflexion (Monday was -25) and passive to +17 (Monday was 0). Since ankle tightness is my major problem, we’re considering that Continue Reading..

    Adventures in Neurorehab – Day 2: Gait, and Stairs, and Therapy Monkeys – Oh My!

    August 22nd, 2017 by

    Today was Day 2 of my 2 weeks at the Kennedy Krieger Institute in Baltimore, and I have to say, I felt a lot better about what we did today than what we did yesterday. Yesterday was a lot of measurements. Today, was a lot of work. Since I want to keep this as part Continue Reading..

    Goal: 0 Percent Dorsiflexion (Adventures in Neurorehabilitation)

    August 21st, 2017 by

    Today marks Day 1 of a 2-week exploration of neurorehabilitation at The Kennedy Krieger Institute in Baltimore – one of the nation’s premier spinal cord rehabilitation centers. (Multiple sclerosis is, in case you’re wondering, considered a spinal cord injury). Most people with my functional ability would be happy with the mobility they have, especially after Continue Reading..

    Neurological Medications and Their Impact on Exercise

    November 17th, 2016 by

    Most neurological clients are on multiple medications, both to manage symptoms and in the cases of chronic diseases such as MS and Parkinson’s disease, to slow disease progression.What does that mean for you as a teacher?First, you need to understand that many of the medications for neurological symptoms cause… wait for it… neurological symptoms. That’s Continue Reading..

    Ten Tips for Working with Neurological Clients

    November 17th, 2016 by

    Program design for clients with central nervous system problems is pretty similar, regardless of what the problem is – stroke, multiple sclerosis, Parkinson’s disease, head injury, etc. Sure, there are differences between the disease processes and treatments, but as exercise professionals, there are certain things that hold true for all of them. Here are my Continue Reading..

    Two Hours in an MRI Machine

    October 21st, 2015 by

    This blog post includes language that might be offensive to some people. Proceed at your own risk. I am generally a very mellow person. Someone cuts me off in traffic? Whatever. A client cancels at the last minute? Awesome – found time. I’ll read my book. Housekeeper breaks an irreplaceable statue my sister got me Continue Reading..

    What Causes Multiple Sclerosis? Could it Be Different for Everyone?

    May 5th, 2015 by

    “I don’t know why your spasticity is getting worse,” my doctor said. “Your MS is stable. You’re doing everything right.” And I was. I understand how to work with spasticity with exercise, stretching, diet, etc. I know the available medications and what’s on the horizon. “Spasticity treatment” is a long-standing Google alert, and I’ve read Continue Reading..

    Depression and Suicide in Chronic Illness

    August 14th, 2014 by

    With the death of the beloved Robin Williams this week, the Internet is abuzz with some of the best, honest, in-your-face truths about depression and its most profound side effect, suicide. In a statement released by his wife, we also learned that Robin Williams had been diagnosed with Parkinson’s disease, and was unready to discuss Continue Reading..

    It’s 90 degrees… or as I like to say, “Kryptonite!”

    July 1st, 2014 by
    Hot. No bueno.

    It’s about two degrees shy of hell right now in Washington, D.C. Last year at this time, I swore I would be living in San Diego for the summer. That has not happened. That needs to happen. The other day, DC was the hottest city in the entire country!! Look!! A hallmark symptom of multiple Continue Reading..

    Adventures in Spasticity, Botox, and Myofascial Release (Part 1)

    June 24th, 2014 by
    stubborn

    If I had to come up with one word to describe me it would probably be driven. Some people would call it stubborn, but I prefer driven because stubborn has negative connotations, and I believe in sending positive vibes out to the universe. Driven has made me try and try and try again to get Continue Reading..